IWK Health Centre
The IWK Health Centre is our local children's hospital that serves Atlantic Canada. The Heart Centre is located within the IWK Health Centre on the 1st floor. To reach the IWK Switchboard, call 902-470-8888.
"Braveheart IWK Heart Centre Parents" - Facebook Group
This active facebook group was created by a local heart mom and is a place where many parents can discuss issues and concerns they may have. It is a closed group and is solely for CHD parents in Atlantic Canada.
Brigadoon Village is a year-round recreational facility that offers camp programming to children and youth living with a chronic illness, chronic condition or special need.
Peer to Peer Support/Parent Matching
If you would like to receive peer to peer support from another CHD parent who has been where you are, please let us know and we'll do our best to match you up, hopefully within the same geographic area, to make things easier. Just fill out the contact form below.
This section of the SickKids Hospital (in Toronto, ON) website has a comprehensive section dedicated to congenital heart defects, types of CHDs, types of procedures and surgeries.
Canadian Congenital Heart Alliance
This charitable organization provides lots of great information on CHD issues, on life insurance, a chat forum and works to improve the quality of life of those living with congenital heart disease.
Children's Wish Foundation
This foundation provides wishes to children ages 3 to 17 years, who have been diagnosed with a life threatening illness. Many children with a CHD have received a wish. If you are interested, you can contact Children's Wish to discuss further. Paperwork will have to be completed by your cardiologist before the foundation can determine whether your child is eligible.
This is a website set up where you can create a page to keep family and friends updated about your child's challenges and progress. It's a great way of keeping all your information together, and others can simply check the page for updates and leave comments to you. You can also add photos, and finally, there is an option to have it converted into an book compilation.
Parents Supporting Parents
This organization is based in Truro, NS and is about parents of children with special needs supporting other parents with special needs children. They have a monthly support meeting, and a monthly playgroup. There is at least one heart parent in that group already.
The Tiny Light Foundation
The Tiny Light Foundation is a non profit organization that provides professional photography for children and families that have been faced with a life altering diagnoses. Please visit their site for more info and to apply. Several CHD families from our area have already had photo sessions with them.